Determinants of parents’ professional aspirations towards children with disabilities

dr hab. Monika Parchomiuk, prof. UMSC

Instytut Pedagogiki, Wydział Pedagogiki i Psychologii UMCS w Lublinie

prof. dr hab. Janusz Marian Kirenko

Instytut Pedagogiki, Wydział Pedagogiki i Psychologii UMCS w Lublinie
https://orcid.org/0000-0002-6525-4007

Abstract

The article presents the results of the research aimed to determine the relationship between parents’ professional aspirations towards their children with disabilities and selected psychosocial resources (self-image, social support and ways of coping with stress). The instruments included: Parental Aspirations Questionnaire, The Tennessee Self Concept Scale, The Social Support Questionnaire, and Coping Inventory for Stressful Situations. The analysed material was obtained from 494 mothers and fathers bringing up children with physical, sensory and intellectual disabilities. Regression analyses and path analyses were used to determine the influence of selected resources on the formation of parents’ professional aspirations towards child. The constructive role of adaptive competences, such as positive properties of self-image, as well as the negative role of maladaptive competences i.e. poor integration have been confirmed. The positive contribution of social support has not been confirmed.

Keywords:

aspirations, parents of children with disabilities, social support, self-image, coping

Auriemma, D. L. et al. (2022) ‘Parenting stress in parents of children with learning disabilities: effects of cognitions and coping styles’, Learning Disabilities Research & Practice, 37(21), pp. 51–63.
DOI: https://doi.org/10.1111/ldrp.12265   Google Scholar

Baker, W. (2017) ‘Aspirations: the moral of the story’, British Journal of Sociology of Education 38(8), pp. 1203–1216.
DOI: https://doi.org/10.1080/01425692.2016.1254540   Google Scholar

Bellur, Z., Aydin, A., and Aplay, E. (2018) ‘Mediating role of coping styles in personal, environmental and event related factors and posttraumatic growth relationships in women with breast cancer’, Turkish Journal of Clinical Psychiatry 21, pp. 38–51.
DOI: https://doi.org/10.5505/.2018.65365   Google Scholar

Blacher, J., Kraemer, B. R., and Howell, E. J. (2010) ‘Family expectations and transition experiences for young adults with severe disabilities: does syndrome matter?’ Advances in Mental Health and Learning Disabilities 4, pp. 3–16.
DOI: https://doi.org/10.5042/amhld.2010.0052   Google Scholar

Blustein, C. L., Carter, E. W., and McMilan, E. D. (2016) ‘The voices of parents: post–high school expectations, priorities, and concerns for children with intellectual and developmental disabilities’, The Journal of Special Education 50, pp. 164–177.
DOI: https://doi.org/10.1177/0022466916641381   Google Scholar

Bush, H. H., et al. (2017) ‘Parents’ educational expectations for young children with autism spectrum disorder’, Education and Training in Autism and Developmental Disabilities 52(4), pp. 357–368.
  Google Scholar

Byra, S., and Parchomiuk, M. (2018) ‘Pozytywne zmiany w percepcji matek dzieci z niepełnosprawnością – struktura i uwarunkowania’, Niepełnosprawność. Dyskursy Pedagogiki Specjalnej 30, pp. 324–342.
DOI: https://doi.org/10.4467/25439561.NP.18.034.9872   Google Scholar

Calero Plaza, J., Martínez Rico, G., and Grau-Sevilla, M. (2020) ‘Coping strategies of fathers in early intervention services and parenting stress levels’, Journal of Psychological and Educational Research 28, pp. 119–145.
  Google Scholar

Carona, C. et al. (2013) ‘The disability paradox revisited: quality of life and family caregiving in pediatric cerebral palsy’, Journal of Child and Family Studies 223, s. 971–986.
DOI: https://doi.org/10.1007/s10826-012-9659-0   Google Scholar

Carter, E. W., Austin, D., and Trainor, A. A. (2012) ‘Predictors of postschool employment outcomes for young adults with severe disabilities’, Journal of Disability Policy Studies 23, pp.50–63.
DOI: https://doi.org/10.1177/1044207311414680   Google Scholar

Carter, E. W., Lane, K. L. et al. (2013) ‘Parent assessments of self-determination importance and performance for students with autism or intellectual disability’, American Journal on Intellectual and Developmental Disabilities 118, pp. 16–31.
DOI: https://doi.org/10.1352/1944-7558-118.1.16   Google Scholar

Cooney, B. F. (2002) ‘Exploring perspectives on transition of youth with disabilities: voices of young adults, parents, and professionals’, Mental Retardation 40, pp. 425–435.
DOI: https://doi.org/10.1352/0047-6765(2002)040<0425:EPOTOY>2.0.CO;2   Google Scholar

Doren, B., Gau, J. M., and Lindstrom, L. E. (2012) ‘The relationship between parent expectations and postschool outcomes of adolescents with disabilities’, Exceptional Children 79, pp. 7–23.
DOI: https://doi.org/10.1177/001440291207900101   Google Scholar

Fitts, W.H. (1965) ‘Tennessee Self-Concept Scale Manual. Counselor recordings and tests.’ Nashville.
  Google Scholar

Florian, V., and Findler, L. (2001) ‘Mental health and marital adaptation among mothers of children with cerebral palsy’, American Journal of Orthopsychiatry 71, pp. 358–368.
DOI: https://doi.org/10.1037//0002-9432.71.3.358   Google Scholar

Gallagher, S. et al. (2015) ‘The association between spirituality and depression in parents caring for children with developmental disabilities: social support and/or last resort’, Journal of Religion and Health 54, pp. 358–370.
DOI: https://doi.org/10.1007/s10943-014-9839-x   Google Scholar

Glynne-Owen, R.E. (2015) “I want to have a path”: an exploratory study of parent experience of early autism diagnosis in Massachusetts and central Scotland, Doctorate in Education. The University of Edinburgh. Available at: https://era.ed.ac.uk/handle/1842/21002.
  Google Scholar

Goldenberg, C. et al. (2001) ‘Cause or effect? a longitudinal study of immigrant Latino parents’ aspirations and expectations, and their children’s school performance’, American Educational Research Journal 38, pp. 547–582.
DOI: https://doi.org/10.3102/00028312038003547   Google Scholar

Green, S. E. (2003) ‘“What do you mean ‘what’s wrong with her?’”: stigma and the lives of families of children with disabilities’, Social Science and Medicine 57, pp. 1361–1374.
DOI: https://doi.org/10.1016/S0277-9536(02)00511-7   Google Scholar

Grudniewski, T. (2013) ‘Poziom aspiracji edukacyjnych rodziców wobec własnych dzieci i jego determinanty’, Acta Scientifica Academiae Ostroviensis. Sectio A, Nauki Humanistyczne, Społeczne i Techniczne 1, pp. 269–318.
  Google Scholar

Gupta, S., and Kumar, A. (2020) ‘The mediating role of positive perceptions on coping strategies and psychological well-being among mothers of children with intellectual disabilities’, Advances in Mental Health & Intellectual Disabilities 14, pp. 263–272.
DOI: https://doi.org/10.1108/AMHID-02-2020-0004   Google Scholar

Gutman Morrison, L., and Garland, R. (2008). ‘Determinants of aspirations.’ Centre for Research on the Wider Benefits of Learning Research Report, Institute of Education. London. Available at: https://www.researchgate.net/publication/320195031_Determinants_of_aspirations_Wider_Be-nefits_of_Learning_Research_Report_No_27.
  Google Scholar

Hall, H.R., and Graff, C.J. (2011) ‘The relationships among adaptive behaviors of children with autism, family support, parenting stress, and coping’, Issues in Comprehensive Pediatric Nursing 34, pp. 4–25.
DOI: https://doi.org/10.3109/01460862.2011.555270   Google Scholar

Hart, C. S. (2016) ‘How do aspirations matter?’ Journal of Human Development and Capabilities 17, pp. 324–341.
DOI: https://doi.org/10.1080/19452829.2016.1199540   Google Scholar

Hartley, S.L., and Schultz, H.M. (2015) ‘Support needs of fathers and mothers of children and adolescents with autism spectrum disorder’, Journal of Autism and Developmental Disorders 45, pp. 1636–1648.
DOI: https://doi.org/10.1007/s10803-014-2318-0   Google Scholar

Higgins, T. E. (1987) ‘Self-discrepancy: a theory relating self and affect’, Psychological Review 94(3), pp. 319–340.
DOI: https://doi.org/10.1037//0033-295X.94.3.319   Google Scholar

Ivey, J.K. (2004) ‘What do parents expect? a study of likelihood and importance issues for children with autism spectrum disorders’, Focus on Autism and Other Developmental Disabilities 19(1), pp. 27–33.
DOI: https://doi.org/10.1177/10883576040190010401   Google Scholar

Jacob, M. J. (2010) ‘Parental expectations and aspirations for their children’s educational attainment: an examination of the college- going mindset among parents’. (Master’s thesis, Graduate School of The University of Minnesota). Available at: https://conservancy.umn.edu/bit-stream/handle/11299/93924/Jacob_umn_0130E_10989.pdf?se-quence=1.
  Google Scholar

Jurisova, E. (2016) ‘Coping strategies and post-traumatic growth in paramedics: Moderating effect of specific self-efficacy and positive/negative affectivity’, Studia Psychologica 58, pp. 259–275.
DOI: https://doi.org/10.21909/sp.2016.04.722   Google Scholar

Kaplan, D. S., Liu, X., and Kaplan, H. B. (2001) ‘Influence of parents’ self-feelings and expectations on children’s academic performance’, The Journal of Educational Research 94, pp. 360–370.
DOI: https://doi.org/10.1080/00220670109598773   Google Scholar

Kirby, A.V. (2016) ‘Parent expectations mediate outcomes for young adults with autism spectrum disorder’, Journal of Autism and Developmental Disorders 46, pp. 1643–1655.
DOI: https://doi.org/10.1007/s10803-015-2691-3   Google Scholar

Kirenko, J. (2002) Wsparcie społeczne osób z niepełnosprawnością. Ryki: Wyższa Szkoła Umiejętności Pedagogicznych i Zarządzania.
  Google Scholar

Kirenko, J. (2022). Aspiracje rodzicielskie wobec dzieci z niepełnosprawnościami. Struktura i uwarunkowania. Lublin: Wydawnictwo UMCS.
  Google Scholar

Kozłowski, and W., Matczak, E. (2016) ‘Aspiracje zawodowe rodziców wobec synów i córek’, Edukacja : studia, badania, innowacje 38 (3), pp. 98–108.
  Google Scholar

Kraemer, B. R., and Blacher, J. (2001) ‘Transition for young adults with severe mental retardation: school preparation, parent expectations, and family involvement’, Mental Retardation 39, pp. 423–435.
DOI: https://doi.org/10.1352/0047-6765(2001)039<0423:TFYAWS>2.0.CO;2   Google Scholar

Lounds, J. et al. (2007) ‘Transition and change in adolescents and young adults with autism: longitudinal effects on maternal well-being’, American Journal on Mental Retardation 112, pp. 401–417.
DOI: https://doi.org/10.1352/0895-8017(2007)112[401:TACIAA]2.0.CO;2   Google Scholar

Mak, W. W. S., and Kwok, Y. T. Y. (2010) ‘Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong’, Social Science and Medicine 70, pp. 2045–2051.
DOI: https://doi.org/10.1016/j.socscimed.2010.02.023   Google Scholar

Mantri-Langeveldt, A., Dada, S., and Boshoff, K. (2019) ‘Measures for social support in raising a child with a disability: A scoping review’, Child: Care, Health and Development 45, pp. 159–174.
DOI: https://doi.org/10.1111/cch.12646   Google Scholar

Markus, H., and Nurius, P. (1986) ‘Possible selves’, American Psychologist 41(9), pp. 954–969.
DOI: https://doi.org/10.1037//0003-066X.41.9.954   Google Scholar

Matczak, E., and Kozłowski, W. (2018) ‘Aspiracje edukacyjne rodziców i dzieci a osiągnięcia szkolne’, Studia Edukacyjne 47, pp. 313–328.
DOI: https://doi.org/10.14746/se.2018.47.19   Google Scholar

Miller, K.D. et al. (2018) ‘“Letting go:” parent perspectives on the outcomes of an inclusive postsecondary education experience for students with developmental disabilities’, Journal of Postsecondary Education and Disability 31(3), pp. 267–285.
  Google Scholar

Minnes, P., Perry, A., and Weiss, J. A. (2015) ‘Predictors of distress and well-being in parents of young children with developmental delays and disabilities: the importance of parent perceptions’, Journal of Intellectual Disability Research 59, pp. 551–560.
DOI: https://doi.org/10.1111/jir.12160   Google Scholar

Moran, K.M. (2013) ‘Influences on high school adolescents’ college and career aspirations and expectations’, (Doctoral thesis, Boston University School of Education) Available at: https://hdl.handle.net/2144/11153
  Google Scholar

Murayama, K., et al. (2016) ‘Don’t aim too high for your kids: parental overaspiration undermines students’ learning in mathematics’, Journal of Personality and Social Psychology 111, pp. 766–779.
DOI: https://doi.org/10.1037/pspp0000079   Google Scholar

Olaosebikan, O. I., and Olusakin, A. (2014). ‘Effects of parental influence on adolescents’ career choice in Badagry local government area of Lagos State, Nigeria’, IOSR Journal of Research & Method in Education 4, pp. 44–57.
DOI: https://doi.org/10.9790/7388-04434457   Google Scholar

O’Riordan, F.S. (2013) ‘Mums’ aspirations for their family member with Down Syndrome in adulthood within the context of knowing the rights of disabled people’, (Master’s thesis, Centre for Disability Studies School of Sociology and Social Policy University of Leeds) Available at: https://disability-studies.leeds.ac.uk/wp-content/uploads/sites/40/library/dis-fiona-oriordan-2013.pdf.
  Google Scholar

Panicker, A. S., and Ramesh, S. (2018) ‘Psychological status and coping styles of caregivers of individuals with intellectual disability and psychiatric illness’, Journal of Applied Research in Intellectual Disabilities 32, pp. 1–14.
DOI: https://doi.org/10.1111/jar.12496   Google Scholar

Parchomiuk, M. (2007) Rodzice dzieci z mózgowym porażeniem dziecięcym wobec sytuacji trudnych. Lublin: Wydawnictwo UMCS.
  Google Scholar

Patton, K. A. et al. (2018) ‘Parent-related stress of male and female carers of adolescents with intellectual disabilities and carers of children within the general population: a cross-sectional comparison’, Journal of Applied Research in Intellectual Disabilities 31, pp. 51–61.
DOI: https://doi.org/10.1111/jar.12292   Google Scholar

Peer, J. W., and Hillman, S. R. (2014) ‘Stress and resilience for parents of children with intellectual and developmental disabilities: a review of key factors and recommendations for practitioners’, Journal of Policy and Practice in Intellectual Disabilities 11, pp. 92–98.
DOI: https://doi.org/10.1111/jppi.12072   Google Scholar

Poon, K.K., Koh, L., and Magiati, I. (2013). ‘Parental perspectives on the importance and likelihood of adult outcomes for children with autism spectrum disorders, intellectual disabilities or multiple disabilities’, Research in Autism Spectrum Disorders 7, pp. 382–390.
DOI: https://doi.org/10.1016/j.rasd.2012.10.006   Google Scholar

Raina, P. et al. (2005) ‘The health and well-being of caregivers of children with cerebral palsy’, Pediatrics 115, pp. 626–636.
DOI: https://doi.org/10.1542/peds.2004-1689   Google Scholar

Reyes, C. et al. (2022). ‘Factors associated with transition planning in autism and other developmental disabilities’, Journal of Developmental and Physical Disabilities 34, pp. 43–56.
DOI: https://doi.org/10.1007/s10882-020-09785-3   Google Scholar

Rookey, B.D. (2003) ‘Educational aspirations: The role of social support and self-assessment’, (Master’s thesis, Graduate School at Scholar-Works at University of Montana). Available at: https://scholarworks.umt.edu/cgi/ viewcontent.cgi?article=6530&context=etd.
  Google Scholar

Schroeder, E. (2016) ‘High early parental expectations predict improved independent living and quality of life for adults with autism spectrum disorder’. (Bachelor thesis, The University of North Carolina at Chapel Hill). Available at:https://cdr.lib.unc.edu/concern/honors_theses/1g05fg95c
  Google Scholar

Small, S.A. (1988) ‘Parental self-esteem and its relationship to childrearing practices, parent-adolescent interaction, and adolescent behaviour’, Journal of Marriage and Family 50(4), pp. 1063–1072.
DOI: https://doi.org/10.2307/352115   Google Scholar

Smyth, M., and McConkey, R. (2003) ‘Future aspirations of students with severe learning disabilities and of their parents on leaving special schooling’, British Journal of Learning Disabilities 31, pp. 54–59.
DOI: https://doi.org/10.1046/j.1468-3156.2003.00207.x   Google Scholar

Strelau, J. et al. (2009) Kwestionariusz radzenia sobie w sytuacjach stresowych CISS. Podręcznik do polskiej normalizacji. Warszawa: Pracownia Testów Psychologicznych Polskiego Towarzystwa Psychologicznego.
  Google Scholar

Washington-Nortey, P.M., Serpell, Z. (2021) ‘Parental expectations for children with intellectual disability or autism in Ghana and Zambia: A concept mapping study’, Research in Developmental Disabilities 114, doi:10.1016/j.ridd.2021.103989
DOI: https://doi.org/10.1016/j.ridd.2021.103989   Google Scholar

Werner, S., and Shulman, C. (2013). ‘Subjective well-being among family caregivers of individuals with developmental disabilities: The role of affiliate stigma and psychosocial moderating variables’, Research in Developmental Disabilities 34, pp. 4103–4114.
DOI: https://doi.org/10.1016/j.ridd.2013.08.029   Google Scholar

Woodman, A. C., and Hauser-Cram, P. (2013) ‘The role of coping strategies in predicting change in parenting efficacy and depressive symptoms among mothers of adolescents with developmental disabilities’, Journal of Intellectual Disability Research 57, pp. 513–530.
DOI: https://doi.org/10.1111/j.1365-2788.2012.01555.x   Google Scholar

Znoj, H. (2006) ‘Bereavement and posttraumatic growth.’, in: L. G. Calhoun and R. G. Tedeschi (eds) Handbook of posttraumatic growth research and practice, Routledge: New Jersey. London, pp. 176–196.
  Google Scholar

Zoellner, T., and Maercker, A. (2006) ‘Posttraumatic growth in clinical psychology – a critical review and introduction of a two component model’, Clinical Psychology Review 26(5), pp. 626–653.
DOI: https://doi.org/10.1016/j.cpr.2006.01.008   Google Scholar

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Published
2024-12-20

Cited by

Parchomiuk, M., & Kirenko, J. (2024). Determinants of parents’ professional aspirations towards children with disabilities. Family Forum, 14, 337–362. https://doi.org/10.25167/FF/4719

Authors

dr hab. Monika Parchomiuk, prof. UMSC 

PhD Monika Parchomiuk, Associate Professor, Institute of Pedagogy, Faculty of Pedagogy and Psychology, Maria Curie-Sklodowska University in Lublin

monika.parchomiuk@mail.umcs.pl

ORCDI 0000-0002-0756-4242

Selected publications:

  • Ćwirynkało, K. & Parchomiuk, M. (2024). A focus on fathers with intellectual disabilities and child protection. Family Relations, 71(1), 247-261.

  • Ćwirynkało, K. & Parchomiuk, M. (2023). Support as described by fathers with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 36(2), 320-332.

  • Żyta, A., Parchomiuk, M. & Ćwirynkało, K. (2023). Inclusive research as a way of empowering people with intellectual disabilities. reflections of the training participants. International Journal of Special Education, 38(3), 16-27.

  • Ćwirynkało, K., Parchomiuk, M. & Fronek, P. (2023). Fathers with intellectual disabilities raising children with disabilities in Poland: An interpretive phenomenological analysis. Child & Family Social Work, Online version of record before inclusion in an issue, 1-11.

  • Parchomiuk, M. (2021). Old age in adults with ASD: psychosocial aspects—a systematic review. Review Journal of Autism and Developmental Disorders, 8, 498-512.

  • Parchomiuk, M. (2019). Ageing, old age and dying of people with intellectual disabilities. Kraków.


Authors

prof. dr hab. Janusz Marian Kirenko 
https://orcid.org/0000-0002-6525-4007

Professor Janusz Kirenko, Institute of Pedagogy, Faculty of Pedagogy and Psychology, Maria Curie-Sklodowska University in Lublin

janusz.kirenko@mail.umcs.pl

ORCID 0000-0002-6525-4007

Selected publications:

  • Kirenko, J. (1998). Psychosocial determinants of sexual functioning in persons with spinal cord injury. Maria Curie-Skłodowska University Press, Lublin, p. 264.

  • Kirenko, J. (2002). Social support for people with disabilities. Publishing House of the Higher School of Pedagogical and Management Skills in Ryki, Ryki, p. 360.

  • Kirenko, Y. (2006). Faces of disability. Wincenty Pol University of Social and Natural Sciences Publishing House, Lublin, p. 152.

  • Kirenko, J. (2007). Individual and Social Perception of Disability. Maria Curie-Skłodowska University Press, Lublin, p. 322.

  • Kirenko, J. (2015). John Paul II in the face of suffering and disability. In K. Pilarczyk (ed.), De revolutionibus orbium popularum Ioannis Pauli II. The Pope against Social Exclusion. Sejm Publishing House, Warsaw, pp. 445-470, ISBN: 978-83-7666-406-4.

  • Kirenko, J. (2022), Parental aspirations towards children with disabilities. Structure and determinants. Maria Curie-Skłodowska University Press, Lublin, p. 696.



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